A study found Evrysdi (risdiplam) helps the body produce more SMN, and also revealed genetic differences between SMA types 2 and 3.

For guest writer Maria Llave, having consistent access to Medicaid provides peace of mind, enabling her to focus on her future.

Restoring SNAP23 or replenishing these vesicles shows promise for improving bone health in SMA. Weak bones in people with ...

Columnist Brianna Albers says that moving out of her long-time home with SMA has turned out to be her biggest gamble yet.

Columnist Helen Baldwin says she learned this lesson when her third baby, Jeffrey, was born with SMA in the late 1990s.

SMA Europe is accepting proposals for research projects, with motor regeneration and SMA metabolism among the priority areas ...

Omaveloxolone (approved for Friedreich's ataxia) may help protect cells from stress and correct underlying dysfunction in SMA ...

Treatment with Zolgensma helped children with SMA gain or maintain motor milestones and motor function, a real-world study in ...

I recently wrote about how I’ve been in the process of transitioning from a children’s hospital to an adult hospital. It’s meant saying goodbye to the place that knew my medical history better than ...

When I graduated from college in 2005, I received a special gift: a large whiteboard to hang on the wall. It had 38 pictures on it showing many of my adventures with SMA and other key moments I’d had ...

Since our founding in 2005, the Spinal Muscular Atrophy Foundation (FundAME) has been working to improve the current and future quality of life for people with SMA and their families through ...

I don’t talk to my ex anymore. For the sake of this column, I will have to let her know about it as a courtesy. But as far as a daily choice goes, it’s not one I make anymore. Readers who’ve kept up ...